• Nehal Swami

Long-Term Survival is the Rule

Updated: Sep 8


Assessment of health-related quality of life (HRQOL) among pediatric liver transplant patients has depended on conventional markers such as growth milestones, number of hospitalizations, and illness symptoms. However, this practice has lately begun to change. There were no precise measurements of transplant patients and their families specific social, economic, or emotional challenges. Creating and implementing such a measurement is essential to comprehensively and accurately evaluate patients' continuing health status after receiving a liver transplant.

The Pediatric Liver Transplant Quality of Life (PeLTQL) questionnaire was created to meet this need. The questionnaire was developed by researchers at SickKids and IWK Health Centre in Halifax. The PeLTQL is the first validated disease-specific HRQOL tool for pediatric liver transplant recipients. The PeLTQL provides a voice for patients and parents' perspectives. It includes themes identified by patients and parents as important – social and emotional well-being, coping, change, and future health – themes that, when better understood, can be used to inform better care (1).

A multinational team of researchers and collaborators spearheaded by founders Dr. Vicky Ng, MD, FRCPC (SickKids), and Dr. Anthony Otley, M.Sc., MD, created the PeLTQL questionnaire (IWK Health Centre, Halifax).

Behavioral health professionals may expect more referrals from primary care clinics, encouraging patients to use mobile health applications and supply the necessary digital gadgets. Patients disclosed sensitive information about themselves by combining a self-administered app with questions posed by healthcare experts during in-person sessions.

Self-administered mHealth applications have proved popular with patients because they allow them to self-regulate symptoms, bypassing the time constraints and social awkwardness associated with screening in a primary care environment.

A study comparing the efficacy of self-administered health apps to in-person question administration found twice as many individuals who needed rapid clinical intervention.

Researchers determined that respondents were more inclined to answer sensitive questions via a mobile app than in person because it was less humiliating.

Researchers determined that a self-screening mobile health application is more effective than verbal questioning because it lowers social anxiety, allowing patients and clients to answer sensitive questions with less restraint.

A smartphone can improve healthcare access by allowing individuals to investigate their conditions and nearby providers.

People with access to intelligent devices may learn about their health and choose which physicians to see.

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